It may be the dreary skies, it may be the after holiday blues, and it may even be that we are again entering the winter season of grief but I am feeling emotionally strung out. I feel raw, exposed and vulnerable this rainy Monday morning. As the familiar dates begin to re-appear, I am feeling the weight of loss and although I am getting much better at the balance between the sadness of yesterday and the joy of today (thank you God), there are certain days that will always prick me to my heart's core.
January 25th for instance is one. Four years ago on the 25th of January we dedicated our sweet baby to Jesus along with an early birthday party bash at the church. The church was packed with amazing family and friends - many of which traveled to be there for this celebration. 4 years ago we were celebrating Grace's 1 year birthday and this year we will be remembering her 5th. Insert long *sigh* here. The 25th of January, 2009 was such a bittersweet day. We were told earlier that week that she was in fact regressing, and we were given the words 'palliative care' and 'keep her comfortable' but we hadn't bought in just yet. There is a strange dichotomy that comes to those in such peril; to those stuck in that proverbial rock and hard place. You long and hope for the best outcome, while all the while a nagging feeling of the opposite keeps rising within. It was in this balance that we found ourselves that beautifully painful day in January.
We dedicated and released our littlest lamb to Jesus trusting that He would make all things beautiful in His time. Ecclesiastes 3:11 This dedication was not like the ones we had experienced before when we brought our healthy children to the Lord and asked for guidance to rear them and love them. No, this dedication was a turning point for us. We released our baby girl to the Shepherd and His will for her. Did we still hope she would make a full recovery? Most assuredly, yet in the moment captured in the picture below, a painful shift occurred in our hearts. Gracie was indeed living on borrowed time.
My heart's memory flashed back to that hospital hallway where I pleaded with God for more time with my baby. I realized in that lonely hallway that Grace was on the edge of her life and that all I wanted was for more time with her. So I pleaded like never before and although God did not answer my prayer for complete healing for here on earth, He did grant me the gift of time.
Every so often my spirit is still nudged and reminded that we all are living on borrowed time. Every breath we take is given to us it is not ours to determine the days, hours or seconds. When one is in crisis this thought of 'living each day like it's your last' is suddenly slammed into your face like a cruel, unexpected wind that takes your breath away. Yet when the winds of crisis settle, we fall back into this deceptive thought that life is ours and runs on our time and in our control. The reality is that we are all living on borrowed time. I am reminded this rainy Monday to love Christ and others with all that I have so that when crisis comes, I will have no regrets about loving this life I have been given. I am challenged today as I think and pray for the beautiful brave souls going through all sorts of differing crises today. I am challenged to love my family and community around me so that they know who I belong to, not only in times of crisis, but in the beautifully mundane moments of the everyday as well.
My heart has been broken. Into too many pieces to count. I thought I would never live to see the day where I could say it was mended. The process was painful, the result nothing short of miraculous. My broken heart is and forever will be beautifully mended.
Monday, January 28, 2013
Friday, January 04, 2013
New Year Musings
Yes it is that time of year again, where we take stock of the past and look to the future with doe like eyes of anticipation. A new year is a time of fresh starts, new hopes, and most of all a clean slate. Last year at the beginning of the year, I met with a dear friend who shared with me that she chooses a verse each year as a theme verse! What an awesome idea! So I followed her example and I chose the verse "I can do all things through Christ who gives me strength." Phil. 4:13 Instead of setting up 'goals' for the year, I chose to live my life through the lens of this verse. Working as a substitute teacher was a HUGE step for me in my grief journey. I actually thought I would never return to teaching after our journey with Grace. Going through the process of being hired and entering new situations everyday as a sub is draining in every way. It's hard being the new girl in the staff room every day and there are days when I leave the classroom with a migraine and a broken heart for the hurting kids I encounter. Don't get me wrong, there are other days where I leave uplifted, feeling like I had made a difference in the life of a child. Yet, as a sub, you never know what kind of situation you will be walking into. The stress of it is hard, and after experiencing such deep grief, these normal stresses earlier on in my grief would have left me paralyzed.
So as I entered 2012, strength in HIM who carried me through the darkest valley of my life, became my daily lens. Each day, I cinched my waist with the belt of truth, His word and prayed that He would be with me in every situation and circumstance.
So as I look back on this year I can see so clearly how God has strengthened me and has brought yet another level of healing. I am in awe some days that we are coming up to Gracie's 5th birthday in just a few short weeks. Five years old seems, well...old. In my heart she will always be baby Grace, but in reality, she would be 5...entering Kindergarten in the fall. My heart misses her, aches for her, and will always grieve for the years lost. Yet, simultaneously I am also so incredibly thankful for the year I had her. Although the pain of her loss hasn't dulled, I know that God has done a miraculous work in me for I am finding joy in life again. Although in the early days of grief I still found joy in my children and my family, the joy of 'life' had gone. Things that used to make me laugh were somehow dimmed. For example, Nerf gun fights at Christmas with the Evans Family have been a long standing tradition that my brother-in-law started when we were just teens. We would rampage through the house, shooting through Christmas tree branches and hiding in stairwells, laughing until our sides hurt. This is the first year since Grace died that I actually joined in on our family Nerf Gun fight. Now this may not seem like a big deal to an outsider, but in my heart it was representative of something great. Everyday joys are returning and what makes this notable is that I can experience this joy without the guilt. You see, when you lose someone you love so deeply, you feel guilty when you enjoy life for your heart is torn by the opposing emotions. How can I possibly feel happy when my heart is so very sad? Learning to balance these opposing emotions is getting easier, and through HIM who gives me strength I am finding joy without guilt more and more.John 15: 4 is my theme verse for this year. Now that I have found the strength in HIM to do things I never thought I could, my heart's cry for this year is that I lean into Him in order to do all that He has called me to do. I was just talking about this thought with my sister the other day. I want to be the 'me' He created me to be. So here it is...."Remain in me, and I will remain in you. For a branch cannot produce fruit if it is severed from the vine, and you cannot be fruitful unless you remain in me."
If you do choose to join in on this challenge... what will be your verse for this year and why did you choose it? May the year 2013 bring us closer to Him and His will for us! Oh how I long to be who HE sees in me. As I look to this year in hopes of being pruned and branched out by the Father I leave you with a quote from dear ol' Anne of Green Gables by L.M. Montgomery - "I'm not a bit changed--not really. I'm only just pruned down and branched out. The real ME--back here--is just the same."
Thursday, December 06, 2012
Christmas Redeemed
Check out my article entitled "Christmas Redeemed" published in the Testimony Magazine!
Finding meaning in the madness of the season.
Click here for article
Finding meaning in the madness of the season.
Click here for article
Monday, November 19, 2012
The Gift of Time
We were so honored to be asked to share our amazing journey of Grace as family speakers of Canuck Place at this year's Gift of Time Gala. What an amazing night. We were blessed beyond measure to have been chosen to share the life of Grace and return thanks to Canuck Place as an organization for the enormous amount of support they were not only to Grace but to us as a family.
Many of you have asked about the night and our speech. We are very pleased to say that over $700,000 was raised that night for Canuck Place!!!! We were overwhelmed by the generosity in the room! Many supporters told us they gave because of a direct result of sharing Grace's story! Oh how that made our hearts sing!
Here is just a snippet/portion of our speech from that night...
We agree
wholeheartedly with the purpose stated on CP’ website that Canuck Place
encourages each child to ‘embrace life’ and believes in enhancing the quality
of whatever time a child may have left by empowering them to live fully and
joyfully
Many of you have asked about the night and our speech. We are very pleased to say that over $700,000 was raised that night for Canuck Place!!!! We were overwhelmed by the generosity in the room! Many supporters told us they gave because of a direct result of sharing Grace's story! Oh how that made our hearts sing!
Here is just a snippet/portion of our speech from that night...
Nelia: William Arthur Ward
stated that feeling gratitude and not expressing it is like wrapping a present
and not giving it. Tonight I am so
excited to finally GIVE the long awaited gift of THANKS and gratitude to Canuck
Place as an organization with all of its doctors, nurses, staff and generous
donors such as yourselves here tonight.
We wear the name of a Canuck Place Family with pride and to be asked to
share tonight is an honour we do not take lightly.
....Even before the kindness
of the staff, and the confidence of the doctors and nurses, my soul felt at
peace. It felt so strange after being in
a state of fight or flight for so long, to feel peace. We met with staff and walked through the
house and learned that CP was far more than we had ever imagined it to be. We were told that the staff at CP were not
there to stop the roller coaster of Grace’s illness, rather they were there to
provide comfort and support for as long as the ride would last. No one was trying to
‘fix’ her and no one was frustrated that she didn’t fit a typical mold. The nurses were so in love with our sweet
babe and literally fought over who would be the first to cuddle her. Do you know what that did to this tired
mother’s heart? I was so tired of the
fight…the fight of advocating for my helpless babe…the fight of trying to get people
to listen and to care…to notice her. And
here – at CP the staff saw her value and it showed. She was not just a patient…they knew her by
name and loved her and for us that made all the difference.
And tonight we want to
help you see all that Canuck Place does through a two different lenses…through
the perspective of a mother and a father.
Nelia: To see CP through the
lens of a mother’s heart is where I would like to take you tonight. To fit into a few minutes all the stories and
memories of our amazing journey of Grace at CP is impossible. So I chose the nearest and most dearest
stories of thankfulness that stood out most during our time at CP with our
sweet baby Grace.
Being away from my
family was taxing…my two older children were still little themselves at the
tender ages of 4 and 2 and a half. The
separation of our family and missing out on life together was excruciating for
me as a mom. I missed out on a lot of
life with my family and they missed a lot of time with Grace. I felt caught between two opposing worlds and
pulled equally from either side. One of
the greatest gifts CP ever gave to me as
a mother was the opportunity for my family to walk through the darkest valley
of our life together…as one. CP
felt like a home away from home….being together under one roof to walk this
painful journey together was the greatest gift to my weary soul.
There was such a joy in
knowing that my older children and my husband could pop in and see Gracie, hug
her and hold her, sing to her, just be with her. Olivia and Isaiah loved being at CP…they
flourished while there as they frolicked from the volcano room where they could
jump and play, to the sand room (as they affectionately called it) where they
received play therapy, to the school/dress up art room where they could so
freely express themselves, to the gorgeous grounds, garden and play house – my
kids were happy….all 3 of them – and finally so was I.
To be able to feel joy
and peace during such a tumultuous time seems so backwards. Yet, this is the power of CP. To take a mother who was so broken-hearted
and weary from the journey of gradual loss and allow her the gift of finding
joy in the most painful moment of her life is nothing short of a miracle.
CP gifted us with time. I love
that the gala is phrased ‘The Gift of Time’ because to a parent with a child
with a life threatening illness there is NOTHING more valuable than time. We nearly lost Grace in Sept 2008 –when we
were first introduced to CP. I remember
crying out to God in that hospital hallway pleading for more time. More time to love her than trying to fix her,
more time to hold her rather than researching a cure, more time to be together
as a family rather than an ocean apart TIME…indeed
the most precious gift. I am forever
grateful for the extra five months that we had with our sweet Grace. Time with our gentle warrior, as we lovingly
called her, was like water to my thirsty soul.
When I would get caught up in the moment and begin worrying about the
future and how long we would have her, I would hear a gentle whisper…”to enjoy
each moment…embrace her beautiful life, make a conscience effort to be present
in each moment with Grace – to cherish this time!” Those precious moments and
memories with our Gracie Grace were like a vapour in the wind…yet somehow
miraculously CP helped to suspend those moments allowing us to share a lifetime
of love with our sweet baby in a short amount of time.
ANDREW: What does Canuck Place
mean to me as a father? When I came to Canuck Place I was beaten down and felt
like a failure. Fathers are supposed to provide for and protect their
children and I could do neither for Grace. Everything was moving so fast
that I couldn't keep up. Our stay at Canuck Place allowed us to slow down
enough to get grounded. The care that they provided--physical, emotional, and
spiritual--allowed this father to rise up and be a man again.
I watched and talked with other fathers who were walking with the
same pain I was. Somehow this made me feel normal. I had not
failed my family and Gracie; rather I was doing everything I could to make sure
that Gracie was in the best possible place for her. I was providing and
protecting. Canuck Place restored my dignity as a father. At Canuck
Place on the front desk when you walk in there will appear a green light every
once in a while. When I first saw it I asked one of the nurses what it
meant and she told me that it was to let everyone in the house know that
someone was coming to the end of their life's journey. When our family
was at Canuck Place for the last time with Gracie and she was very obviously coming
close to her end I remember asking the doctors and nurses if we should turn on
the green light. In their wisdom they turned around and told us that it
was our choice; did we think Gracie was coming to the end? This was a
small but amazing gift that they gave us. They gave us a measure of
control in an uncontrollable situation and for this father it gave me a sense
of honour that I could play this part in my daughter's journey. I know
that the doctors knew more than me and probably knew that these were Gracie's
last hours way before I did, but they let us come to the realization on our
own. They could have easily dictated what we were to do (turn on the
green light, call your family, call the funeral home). Instead they were
so gracious and caring. Canuck Place gave me back my dignity and honour
as a father in those moments.
The
peace that I had at Canuck Place was not just because of their care while
Gracie was alive but also their care for us after she died. They have
helped us in so many ways and one in particular stands out in my mind. On
the morning that Gracie died we were given some time to just be with her as a
family. I remember that Nelia bathed her and dressed her up so pretty.
Her skin was a beautiful pure white and her face was so peaceful, all her
pain was gone. It was in this time with Gracie that I was able to dance my last
dance with her. I played the song "I will dance with
Cinderella" by the artist Steven Curtis Chapman and I dance with my little
girl. I danced that dance for allthe dances I would miss. Dancing
with her in the living room as she practiced for her first dance, for her prom,
and for her wedding. I was able to freely weep and embrace my little
girl. It gave me a memory that I will hold dear to in my heart for the
rest of my life. It allowed me to release my daughter to go to her
Heavenly Father and this gave me peace. The staff at Canuck Place didn't
rush us or dictate our last moments with Grace and this brought a measure of
healing to my broken heart. It has made it possible to continue healing 3
1/2 years later.
Canuck Place allowed me
to be a father and husband; to play with my kids, to date my beautiful wife
Nelia, and to care for Gracie. You have all allowed me to be a father to
my children and a husband to my wife so from the depths of my heart I wish to
say thank you. Thank you, because in the chaos of our lives, Canuck Place
was a haven of comfort, peace and dignity that allowed this man to be a father
once again.
CONCLUSION - Andrew: Our family will always
remember CP as a place where Gracie lived, not solely the place where she
died. In fact, after returning from our
first ever trip to DisneyWorld, we asked Olivia and Isaiah where they wanted to
go for our next family vacation and without skipping a beat they both said –
Canuck Place! Isn’t that amazing? As a family one of our favorite places in the
whole world to be is at CP – for it reminds us of a sweeter time when our
family was whole, as one, and we were happy for we were together.
And so tonight we stand
here before you so forever grateful. You
– each of you here tonight has made a difference in our life – and in the life
of our sweet baby GRACE. We are just one
family of many that wear the name of a CP family proudly. To share our amazing journey of Grace with
you here tonight has made our hearts sing.
We agree
wholeheartedly with the purpose stated on CP’ website that Canuck Place
encourages each child to ‘embrace life’ and believes in enhancing the quality
of whatever time a child may have left by empowering them to live fully and
joyfully
And that is what it all
comes down to tonight isn’t it? Celebrating
the beautiful life of these children…to sing their song even after they are
gone! And so we leave you tonight with a
quote from the beloved Children’s Author Dr. Seuss - ”Unless someone like you
cares a whole awful lot, nothing is going to get better. It’s not”
Friday, September 07, 2012
Stewards of the Story
I often think of my journey of Grace as a hidden treasure. Most people don't know the pain we have walked through when they first meet us. We have learned how to engage in today with a piece of our hearts already in heaven, the balance is easier some days than others, but we have been miraculously & beautifully mended.
I like to think that my story of Grace is a gift, a testimony of God's faithfulness and love. I like to think of myself as a steward of this story/gift. I know when I share about Grace and the beauty of her life that God is glorified and honored. Speaking about Grace also makes my heart sing, it awakens the part of my heart that feels muted by her death. I will always share her story and hope to be a faithful steward of this precious gift, the gift of Grace's life.
Today my sweet Olivia has a play date. A cute little gal is over and they are gleefully playing Littlest Pet Shops. I can hear them play..."here's what on the menu" & "sorry we late for dinner." In between their play of animals I hear the following conversation.
Friend: "My mom has 4 kids."
Olivia: "My mom had 4 kids."
F: "What do you mean?"
O: "Well my mom lost a baby in her tummy, but also Grace died"
F: "Grace was your sister right?"
O: "Yes she was my baby sister"
F: "What did she look like, did you get to see her"
O: "Oh yes we got to see her and hold her"
F: "So did she look different?"
O: "Her eyes were always kinda squinty"
F: "So did you see her die?"
*At this point I wondered if I should intervene, but felt the Spirit say "trust me"
O: "No, she died at 1 in the morning I think, and I was sleeping"
F: "Tell me everything that happened."
O: "Well she looked like she was perfect"
F: "Like she was sleeping right?"
O: "No like she was perfect, nothing wrong with her! Her eyes were open and she looked like she was all better"
F: "Was she lying down?"
O: "No my mom was holding her, cradling her and then she looked better then she just lay down"
F: "Then what?"
O: "My mom felt God"
F: "What?"
O: "God...my mom felt God"
*There was silence here for a bit...
F: "Did you bury her in the backyard?"
O: "No we weren't allowed, we have to take a ferry to visit her grave"
F: "That's sad..."
F: "My friends cats died."
O: "Oh that is sad"
*And then they were back to playing with their animals!
Needless to say I was in tears and the lump in my throat was so big I could barely breathe, but I have never been so proud of my sweet girl. My Olivia also has a story to share. She too is a faithful steward of this precious gift of Grace. She has also been beautifully mended through the pain of loss and has come through with such a deep understanding of life, love, and beauty in death.
Children are so pure in their thoughts and feelings! I have learned so much about grief through watching Olivia and Isaiah. They grieve hard, but then it's done. They are able to feel the pain, and then move forward in peace. I am so blessed by my children and am continually drawing from their example. Funny isn't it? You would think that as parents, you would be the one to do all the teaching, but what a wonder it is when the teacher becomes the student!
Thank you Jesus for entrusting us with Grace. Thank you for beautifully mending my precious family and giving us a song in our heart that must be sung! My heart's prayer is that we as a family will be found as good and faithful stewards of the amazing gift we have in our dear Gracie Grace!
I like to think that my story of Grace is a gift, a testimony of God's faithfulness and love. I like to think of myself as a steward of this story/gift. I know when I share about Grace and the beauty of her life that God is glorified and honored. Speaking about Grace also makes my heart sing, it awakens the part of my heart that feels muted by her death. I will always share her story and hope to be a faithful steward of this precious gift, the gift of Grace's life.
Today my sweet Olivia has a play date. A cute little gal is over and they are gleefully playing Littlest Pet Shops. I can hear them play..."here's what on the menu" & "sorry we late for dinner." In between their play of animals I hear the following conversation.
Friend: "My mom has 4 kids."
Olivia: "My mom had 4 kids."
F: "What do you mean?"
O: "Well my mom lost a baby in her tummy, but also Grace died"
F: "Grace was your sister right?"
O: "Yes she was my baby sister"
F: "What did she look like, did you get to see her"
O: "Oh yes we got to see her and hold her"
F: "So did she look different?"
O: "Her eyes were always kinda squinty"
F: "So did you see her die?"
*At this point I wondered if I should intervene, but felt the Spirit say "trust me"
O: "No, she died at 1 in the morning I think, and I was sleeping"
F: "Tell me everything that happened."
O: "Well she looked like she was perfect"
F: "Like she was sleeping right?"
O: "No like she was perfect, nothing wrong with her! Her eyes were open and she looked like she was all better"
F: "Was she lying down?"
O: "No my mom was holding her, cradling her and then she looked better then she just lay down"
F: "Then what?"
O: "My mom felt God"
F: "What?"
O: "God...my mom felt God"
*There was silence here for a bit...
F: "Did you bury her in the backyard?"
O: "No we weren't allowed, we have to take a ferry to visit her grave"
F: "That's sad..."
F: "My friends cats died."
O: "Oh that is sad"
*And then they were back to playing with their animals!
Needless to say I was in tears and the lump in my throat was so big I could barely breathe, but I have never been so proud of my sweet girl. My Olivia also has a story to share. She too is a faithful steward of this precious gift of Grace. She has also been beautifully mended through the pain of loss and has come through with such a deep understanding of life, love, and beauty in death.
Children are so pure in their thoughts and feelings! I have learned so much about grief through watching Olivia and Isaiah. They grieve hard, but then it's done. They are able to feel the pain, and then move forward in peace. I am so blessed by my children and am continually drawing from their example. Funny isn't it? You would think that as parents, you would be the one to do all the teaching, but what a wonder it is when the teacher becomes the student!
Thank you Jesus for entrusting us with Grace. Thank you for beautifully mending my precious family and giving us a song in our heart that must be sung! My heart's prayer is that we as a family will be found as good and faithful stewards of the amazing gift we have in our dear Gracie Grace!
Friday, August 10, 2012
To laugh in joy, to grieve in sorrow....
Yesterday marked 15 years of marriage to my best friend. I know it sounds cliche and a little sugary sweet, but it's the truth. As we watched our wedding video with our children, our hearts swelled with love and memories of days gone by. Our kids giggled with astonishment to see what their parents, grandparents, aunts and uncles looked like 15 years ago. I squirmed at embarrassing parts and laughed my head off at others, and cried at the beauty of the day.
Andrew composed a song for me and performed it for me at the wedding. I was in awe as I watched him sing to me. He was just a young kid, but his heart was mine and I knew it then and I know it now. How blessed I am to have found such true love at such a young age. Some people wondered if we were ready to be married at such tender ages, yet I knew Andrew was to be mine, and I was to be his. Life-long marriage was modeled to us by parents who loved each other and God and I knew we had found that kind of love. Although we were naive and young, I remember wise words from my cousin Linda, who assured me how blessed I was to have found my life long love so early on in life. I love the shock on people's faces when they hear we have been married for 15 years! Andrew was getting his hair cut yesterday and the hair dresser nearly fell over when she heard that he had been married that long! In a world that is so well versed in brokenness and faltering emotion, choosing to love after 15 years truly is a testament of the role that God plays in a marriage.
It was humbling to hear our vows and to see the young promise of hope in our faces and in our smiles. We were on top of the world. We were in that sweet new love stage, and meant every word of our vows. Yet no one could have prepared us for when joy turned to sorrow and our vows became more than just words. We had our ups and downs in marriage of course, yet our journey of Grace led us to the path of unequivocal sorrow and pain. As I watched our young hopeful selves vow before God and man to grieve together in sorrow and love each other through sickness and in health my heart was wrung out. Memories of our sweet baby, the hospital visits, the ultrasounds, the medicines, the medical teams, the countless hours of prayer and fasting, the constant hope that things would change, followed by the somber realization and disappointment that she would not be with us long, all seemed to pour out from my heart.
No, no one could have prepared us as we pledged our lives to each other of the true sorrow we would walk through. No amount of pre-marital counselling, no inspirational talks would ever have been enough to sustain us through the loss of our sweet babe. It is only through the anchor that is Christ that we grew closer together instead of further apart. We met quite a few families in hospital wards, doctor offices and emergency rooms that were broken by the strain of living with a child with such special needs. There were many times Andrew and I grieved differently which often led to stress and hurt in our marriage, but the constant tether we both had to God would draw us back to one another.
As I reflect on these 15 years together, I can see the fruit that has come by choosing to honor those vows we made that day.
Even if I had known the pain that awaited us, I would still choose you Andrew. For the love that was borne from such deep valleys of pain has been equaled by the joy and beauty of the mountain top. There is no one I would rather do life with. It has always been you and always will be...through the joy and the sorrow, in sickness and in health, for richer or poorer, forsaking all others...it is to you, that I continually choose to make this vow.
Andrew composed a song for me and performed it for me at the wedding. I was in awe as I watched him sing to me. He was just a young kid, but his heart was mine and I knew it then and I know it now. How blessed I am to have found such true love at such a young age. Some people wondered if we were ready to be married at such tender ages, yet I knew Andrew was to be mine, and I was to be his. Life-long marriage was modeled to us by parents who loved each other and God and I knew we had found that kind of love. Although we were naive and young, I remember wise words from my cousin Linda, who assured me how blessed I was to have found my life long love so early on in life. I love the shock on people's faces when they hear we have been married for 15 years! Andrew was getting his hair cut yesterday and the hair dresser nearly fell over when she heard that he had been married that long! In a world that is so well versed in brokenness and faltering emotion, choosing to love after 15 years truly is a testament of the role that God plays in a marriage.
It was humbling to hear our vows and to see the young promise of hope in our faces and in our smiles. We were on top of the world. We were in that sweet new love stage, and meant every word of our vows. Yet no one could have prepared us for when joy turned to sorrow and our vows became more than just words. We had our ups and downs in marriage of course, yet our journey of Grace led us to the path of unequivocal sorrow and pain. As I watched our young hopeful selves vow before God and man to grieve together in sorrow and love each other through sickness and in health my heart was wrung out. Memories of our sweet baby, the hospital visits, the ultrasounds, the medicines, the medical teams, the countless hours of prayer and fasting, the constant hope that things would change, followed by the somber realization and disappointment that she would not be with us long, all seemed to pour out from my heart.
No, no one could have prepared us as we pledged our lives to each other of the true sorrow we would walk through. No amount of pre-marital counselling, no inspirational talks would ever have been enough to sustain us through the loss of our sweet babe. It is only through the anchor that is Christ that we grew closer together instead of further apart. We met quite a few families in hospital wards, doctor offices and emergency rooms that were broken by the strain of living with a child with such special needs. There were many times Andrew and I grieved differently which often led to stress and hurt in our marriage, but the constant tether we both had to God would draw us back to one another.
As I reflect on these 15 years together, I can see the fruit that has come by choosing to honor those vows we made that day.
Even if I had known the pain that awaited us, I would still choose you Andrew. For the love that was borne from such deep valleys of pain has been equaled by the joy and beauty of the mountain top. There is no one I would rather do life with. It has always been you and always will be...through the joy and the sorrow, in sickness and in health, for richer or poorer, forsaking all others...it is to you, that I continually choose to make this vow.
Tuesday, June 12, 2012
Size 4
As I was shopping today, grief found me. It is interesting to me when the waves of grief decide to crash to shore. It is not always when I think it will be, and usually not at the best of times. Today as I was walking up and down aisles, a pretty little girl outfit caught my eye. It was a size 4..the size that Gracie would be in if she was still with us. As my eyes scanned to all the little shirts, and skirts and socks my heart wrenched within me. Normally when the waves of grief hit in a public place I would try to get out as quickly as I could. Today, however, I walked the girls clothing aisle and dreamed of her. What would she look like now? If only I could cuddle her in those sweet little pink pj's. Oh that lovely purple dress would look so sweet on her. I wonder if she would like purple - I wonder what her favorite color would be? I wonder if she would like clips and pony tails, or would she prefer headbands like her sister?
Today, I allowed myself to cry and think of her, and as I did the memories of her filled my heart to overflowing. I also allowed my heart the luxury of dreaming of what she must look like now, and all that she can finally do. It amazes me that 3 years can go by so quickly and that life does in fact go on. Yet it also amazes me that in an instant the tiniest reminder, like a size 4 tag on a pretty pink outfit, can remind me of my sweet little girl. And although these reminders twist my heart into painful positions, the memories that pour out are so very precious reminding me once again that beauty can be found in pain and that is a wonderful thing.
Today, I allowed myself to cry and think of her, and as I did the memories of her filled my heart to overflowing. I also allowed my heart the luxury of dreaming of what she must look like now, and all that she can finally do. It amazes me that 3 years can go by so quickly and that life does in fact go on. Yet it also amazes me that in an instant the tiniest reminder, like a size 4 tag on a pretty pink outfit, can remind me of my sweet little girl. And although these reminders twist my heart into painful positions, the memories that pour out are so very precious reminding me once again that beauty can be found in pain and that is a wonderful thing.
Thursday, April 19, 2012
Canucks...OUR team.
Growing up I remember the scene clearly. The tv was locked into one channel for the evening afterall it was Hockey Night in Canada: ba-ba-ba-ba-baaaaaaa....ba-ba-ba-ba-BA-baaaaaa....ba-ba-ba-ba-ba-BA-BA-ba-ba, BA-ba-ba-ba-babababababababa! You know this theme song don't you? Of course you do, around our house in meant one thing...the Canucks are going to play!

Now I know many people these days are speaking ill of the Canucks, people love to bring others down for some strange reason. I remember in the 80's year after year the Canucks were not at the top of their game like other teams....let's say the Oilers. I remember asking my Dad...why do you like the Canucks so much? Why do you cheer for them even though they lose, and not cheer for a team that you know will win? He said, 'well I support the team not the win. When you choose a team, you are loyal to it.'
Years later that response sticks with me. Truth be told I cried myself to sleep in '94 when we were so close to the cup, and to be completely honest my heart hasn't quite healed from the anxiety produced from last year's journey to Lord Stanley's Cup!!! Yet, I support the team not the win. Will I ever cheer for another team? Never. The Canucks are OUR team.
Let me tell you a little about this team of ours. You see, this team is more than a just a hockey team for me. This team of upstanding gentlemen give of their time and some even of their money to support families in our province... especially kids in our province...specifically MY own kids. If you know our story of Grace, then you know how connected we have been to Canuck Place and the difference Canuck Place has made in our life and in the life of our sweet Gracie. These players not only volunteer time at Canuck Place but also at BC Children's Hospital. Some of their wives even give of their time to help the lives of families right here in our own province.
So for any nay-sayers out there...I want to ask you a question. Would you be willing to walk into a Children's Hospice and hold a dying baby? Would you be willing to enter a hospital ward with sick children all around you? Would you give of your time to come and take pictures with little ones fighting for their life with cancer? I remember when Luongo was coming to Canuck Place. I dressed our sweet baby in a cute little outfit. I kept telling her she had to look her best for when Luongo came a'courtin! He came, took pictures, and we even met his lovely wife and little girl. The morale of the house was through the roof. For a moment the reality of life in a children's hospice where life is nearing it's completion for tiny souls was halted, and smiles and happiness prevailed. Yes, the Canucks are a team, they win some and they lose some. Yet, to me they are more than just some guys playing on ice for a cup...they are role models and even heroes in the eyes of our kids.
Don't get me wrong...although I would LOVE to see them win the cup, that is not the reason I cheer. I support the Canucks because in the words of my father I cheer 'not for the win,' but simply because I am loyal to OUR team.
GO CANUCKS GO!!!!!!
Picture of Roberto Luongo with my father, Isaias Ponte, and my jewels, Olivia, Isaiah and our now angel...Gracie.
Monday, April 09, 2012
Grief's Muscle Memory....

Life on a whole is really good right now! No one in my family circle is ill, I have amazing family & friends, I am subbing in a school I love, serving in a great children's ministry and church...yet I am feeling exhausted and blah? I feel ridiculous feeling so glum on such a glorious day of sun and after a lovely weekend celebrating with family! So why so glum?
I miss Grace. There I said it. I know it has been three years, and I know some people would say it is better to move on and not conjure up the past...but I miss her. In someways I want to just say 'sure where's the switch, how do I turn this grief thing off?' After-all who wants to feel such a painful emotion such as grief? Yet my spirit will not allow me to forget. I literally can 'feel' grief. Don't misunderstand me though, the physical pain of grief has subsided greatly from the early days of grief! I have more good days than bad for sure. God has worked a miracle in my life that has allowed me to re-engage with life even after losing my sweet pea! I live with this delicate balance - daily engaging in life here on earth with part of my heart already in heaven! Yet, as much as I would like to close my eyes and open them to find that my grief has vanished, my inner self won't let me forget.
It's kinda like when you are training for a run of some sort. My sister is training for a half marathon right now, and even though it's been awhile since she ran, her body remembers.... it's muscle memory. And so, I believe my heart will always have this memory retention. No matter how many years fly by, there will always be the default imprint of the pain that has molded my heart to where it is now. Whether it is watching Olivia or Isaiah graduating, or watching Andrew dance with Olivia on her wedding day, no matter the occasion, no matter the amount of time I will always remember that empty space in my heart, and that longing for Grace.
I know some may argue, but Jesus is the healer! I do agree, Jesus has healed me, and mended my heart. My blog is titled Beautifully Mended, not beautifully broken for a reason. I do believe my heart has been healed, yet there are cracks and it is these fractured lines that remind me of the pain endured. Yet, the pain is not in vain. I still miss Grace. I always will. I am thankful for the grief memory muscle for it reminds me of where I was, how far I've come, and where I am headed! For although I miss her, and my heart still yearns for her - I KNOW that one day my heart will finally be at peace and in one piece. Jesus will wipe the tears away for good, smoothing over the cracks and fractures... removing the longing for heaven once and for all!
Often here I’m sad and weary,
As the days go by;
Oft the scenes are dark and dreary,
Teardrops dim my eye;
But when this short life is o’er,
We shall weep and sigh no more,
But rejoice forevermore
In our home on high.
As the days go by;
Oft the scenes are dark and dreary,
Teardrops dim my eye;
But when this short life is o’er,
We shall weep and sigh no more,
But rejoice forevermore
In our home on high.
Anticipation by Charles Naylor (1911)
Saturday, March 10, 2012
Letting Go...
Many of you know we were blessed to go to Disneyland with Grandma and Papa (Andrew's parents) this year to celebrate Grace's 3rd Year 'Heaven Due Date' Anniversary. Disney holds a special place in our hearts as it reminds us of a time when our amazing church family (in Sidney at the time) rallied around us and a special family blessed us beyond measure by sending us to DisneyWorld for 2 weeks. It was a first Disney experience for all of us as Drew and I had never been before.
We were in a daze after Grace passed. Life was non-stop and down right frightening at times with her care, and our emotions had been on a wicked roller coaster as she fought and we fought for her life. Our first Disney experience was one of healing, reflecting, and re-connecting as a family. We went through the labor pains if you will, of learning how to transition from a family of 5 to a family of 4. We felt peace there, and for the first time since Gracie had died, we laughed as a family and felt happy in the midst of the ardent pain of loss.
We then went to Disneyland at the mark of Grace's 1 year anniversary. It helped being surrounded by the happiest place on earth - it balanced the extreme sadness that clouded our hearts. I have the most beautiful picture of the kids with their mickey ears looking up at the castle while holding Gracie's hat. It brought joy unspeakable to my heart knowing she was with us in every moment. Last year, we had just moved to the mainland, Andrew was in his first year teaching and life was too hectic to get away. We didn't guard the time well, and the 2nd year anniversary was a dark and difficult one for me. So this year we decided to go to Disneyland again, this time with Grandma and Papa! I thought I was ensuring an easier anniversary. I, being the oh so typical type A personality, had things all planned as to how we would best celebrate Gracie.
The trip was amazing. Having Grandma and Papa there was such fun and we made special memories that will last a lifetime! How blessed we are to have had such an opportunity to vacation with them!!! We had great fun making Daddy and Papa ride the swinging ferris wheel! We soared through the sky in rockets with Grandma - in the rain no less - what a trooper!!! Again, we had a fantastic time despite the little hiccups! My plans however took a turn after turn as things that I could not control kept 'popping up!' Between delayed flights, rain, wind, abnormally chilly temperatures, cold/flu bugs, cancelled shows, and closed rides, my lovely laid out plans became nothing but a confetti of disappointed dust right before my eyes.
Don't get me wrong, we were still in Disneyland and we were still altogether and made amazing memories! Yet, more than all the other disappointments that crept into the picture, what hurt the most was that my carefully thought out plan of carrying a balloon with us throughout the day, and sending it off to heaven at the fireworks was even thwarted. The fireworks were cancelled after waiting until almost 9:00pm with very tired kids which made for a very emotional good-bye to the balloon. After we scribed our love notes to Grace on the balloon and had the kids hold it and say "we love you Grace" they just couldn't let the balloon go. "It's too precious Mommy, I can't let it go!" Talk about heart-wrenching!!!! We realized clearly how the balloon was a symbol of release and it was so very hard to let go. There were no fireworks to distract us from the obvious pain and loss we were feeling in that moment. There was no Tinkerbell flying over the castle to divert our attention. The reality and the pain of missing our sweet baby became all too real in that moment.
We wondered if God was trying to tell us something? Perhaps we have reached another level of healing, a new stage in the journey? Disney was a place where I thought for sure the balance of happy would match the feeling of pain. Yet, this year it didn't feel the same. It was as if God was gently nudging us, reminding us to see that true joy and peace will only be found in Him. Escaping to Disneyland wasn't a bad thing, but laying our hopes and plans there-in is perhaps where I lost sight. I think for us a family we came to once again understand that He is the only one who can help us balance the pain of grief and the beauty in the present. And as the balloon sailed into the night sky (with no picture to document it because the battery died) we watched it rise until it looked as though it had caught flight with a star - which happened to be the second star to the right. How we wished we could take that flight with the balloon just to catch a glimpse of her in wholeness. We remembered her, we cried for her and for ourselves, and then with the strength of the One who holds our precious girl in His hands...we let go once again.
Wednesday, February 22, 2012
My Security Blanket

This time of year will always be bittersweet - no matter how many years pass, Springtime will always remind me of Grace. As new life begins to sprout up from the ground, it reminds my grieving heart that my sweet pea has also bloomed in heaven. I am in awe that it has been nearly three years since our sleeping beauty went to be with her Prince of Peace. I remember in those early days of grief wondering how I would ever survive each passing day - let alone three years? It is nothing short of miraculous that I am here three years later, not only surviving but truly living again.
I have felt a sense of strength in my spirit this year. God has strengthened my resolve and breathed new life and new dreams into my heart. After Gracie passed away I felt stripped of who I was for I became so wrapped up in her care and the care of my family. I felt like a toddler stripped of their security blanket and left to face the world without it. There were days I would cry out in tantrum - longing for her to be back in my arms. Truth be told I took Gracie's actual blanket (my favorite one in the picture above - made by my dear friend Kim) with me everywhere I went - literally EVERYWHERE for the first few months.
In the grocery store if I saw diapers or a baby toy I would reach in my big purse and out came the blanket. I didn't care if people thought I was crazy - I needed to feel her, remember her, and by clenching that blanket I was able to continue shopping. Or if I saw a familiar face or a Puraltaor Truck (that used to deliver her products) I would whip out the blanket just like a toddler would! Sounds a little crazy I know - but in those dark days of grief and depression it was what I needed.
I remember thinking I am never going to be able to give up her blanket! Will I be going to Olivia's high school graduation with the blanket in hand? Thankfully, God is my ultimate comfort and as the days turned into weeks, then months and now years I don't carry it with me throughout the day. I do still keep it close to me at night. It is a tangible way to remember her every night and thank God that she is safe in His arms every night as well.
This blanket was always with Gracie. It is so soft and the colours depicted her personality so well! It is probably the most treasured article of hers that I own. I made myself watch her video this morning - her video eulogy that was shown at her funeral. It is so painful to get through - but as I saw her wrapped in this special blanket, it brought comfort to my heart. She was wrapped in our love from day one, and as much as this blanket physically covered her, we as a family saturated our sweet baby with all the love we had!
Thank you for those of you who still read my thoughts and have followed our story of Grace. I know you loved her and our family. Your prayers have sustained us and again we would appreciate prayer covering over our family as we celebrate and remember the day Grace stepped into true healing - her heaven due date - March 3, 2009.
Precious in the sight of the Lord is the death of his saints. Psalm 116:15
Monday, February 13, 2012
The Precious Day of Love...

Tomorrow, February 14th, people everywhere will celebrate love. Valentine's day for our family takes on a whole new level of love as we reflect and remember Grace's day of birth and the profound love that entered our lives that day.
Gracie's dates are so special to us! When Feb. 12th 2008 came and went with no Gracie, our hearts were anxious and saddened and disappointed. I remember after crying from a long day in hospital and coming home with sweet baby still nestled within, I prayed. Although I was disappointed that no beds in the NICU were available for her, I just had to believe that God knew best.
Here is a note from Feb. 12, 2008 that I updated on my Facebook for friends and family...
We were so hoping to be introducing our dear Grace to you this morning but instead she is still safe within my womb!!! We arrived at the hospital at 630AM, I was admitted, dressed in a lovely blue hospital gown and was poked a few times by a training nurse for my IV. Then we waited and waited and waited until finally we were told that there were NOT enough beds in the Neonatal Intensive Care Unit for Grace. VERY disappointing. We were so ready to meet her and hold her and just be done this 'waiting game.' We are trying to trust in the fact that GOD is in control and knows the perfect time for her to be born and we understand that she is safer within than to be born without a bed in the NICU. Please continue to pray, we need those prayers more than ever. We are so tired and the kids are tired of all of the change. It looks like the tentative date will be Friday at 11am? But they may call earlier? So we will try to keep you posted. Let's keep the faith and keep praying even more fervrently for healing and wholeness in our Baby Grace. We so appreciate each and every one of you and thank you for supporting us on this truly Amazing journey of Grace.
Love
Nelia and Andrew and kiddies.
Love
Nelia and Andrew and kiddies.
God did have another plan - He, in His great love for me, knew how much comfort Gracie being born on this day would bring me. I had no idea that Grace was on loan for such a short amount of time, but He did. Her dates of birth and passing bring a comfort to my heart and a reassurance to my mind. Even though my heart was so heavy & I was left feeling confused that day(Feb.12, 2008) the author of life saw what I just couldn't possibly see or know. Unthinkable pain was awaiting, but also immeasurable love and joy. I will always be so thankful that my sweet pea was born on Valentine's Day - the day we celebrate love!!!! She will always and forever be my sweetest little Valentine, a gift I will forever be thankful for.
Thursday, January 26, 2012
Leaning into the Pain

Leaning Into the Pain.
I remember your smile, I remember your eyes so lovely and green
I remember the softness of your skin and being the happiest I had even been.
I remember the cuddles, I remember the kisses and the moments of peace
I remember when the things took a turn for the worse and the pain it released.
To balance the pain with the joy of your love is getting easier each day
Although the ardent longing of my heart will always remain.
So as reminders and special days come to the surface once again
I will strengthen my resolve to lean into the hurt and the pain
For in embracing the reality of the deep loss and sorrow
It allows for the contractions of grief to do it's part knowing that tomorrow
Will bring new hope, for the sorrow lasts but the night
for joy comes in the morning and reveals the pain into the light
of the One who holds my sweet pea in His ever strong hands
Awaiting for the day I will finally understand His unfathomable plans.
Tuesday, January 10, 2012
Words are Vessels
Words are vessels someone once told me, and that heavy realization changed the way I spoke...or at least thrust me upon the path of such change. How often do we flippantly say words, not knowing how they can impact a soul? To envision each word that comes from our mouth as a cistern that can either hold life or death is profound to say the least. Words have the power to hurt and comfort, lift up or break down, to love or destroy.
I remember being at the grocery store shortly after learning of Gracie's severe brain malformation - not knowing if she would even survive - and as I was waiting for the cashier who was flustered by something at the till, she laughed and innocently said "sorry...I feel so brain dead today." I swallowed the lump of emotions caught in my throat, grabbed my receipt and ran to my vehicle and sobbed. Heaving, uncontrollable sobs overtook me. Here was a cashier who was having a hard day no doubt - obviously not knowing the prognosis of my unborn baby - casually using a phrase that pierced my heart, stabbing me to the very core. Any strength that had been in my spirit all washed away in but an instant. Words.are.vessels.
I think of the times I have spoken words over people, not knowing of course the pain they might have had and it grieves my spirit. When I think of the times when words trickled from my mouth in anger masked as sarcasm, my heart is abashed. Lord, forgive me! As a wife and parent, how I long for the words I speak to be edifying to my husband and children. Criticism (even though the reasoning behind the words are good) can break even the strongest spirit. Do you know that moment when the harshness of your words breaks your child's spirit? In that moment, I rationalize the guilt by giving reasons as to why I had to say what I did, but the sobering reality that how it came across and even more importantly how it was interpreted spurs my spirit to ask my child for forgiveness. It is remarkable how quickly children forgive, a lesson I know I continue to learn from my dear little ones. As a wife, I know when my nagging becomes burdensome. Although I know that I do have the 'right' to say my peace, more often than not, my 'peace' is camoflouged in anger and catapulted in the vessel of my words causing friction and tension in my marriage.
Yet, thankfully words can also be used for edifying, loving, encouraging. I know that my words have also have the power to encourage others and draw them closer to God. My prayer this year is that I would more fully be aware of my words, choosing to use words of life and hope! Grace taught me the fragility of life, and how life here on earth is but a vapor. How quickly we lose sight of that reality! With the time I have been given, may He use me and my words to draw others unto Himself.
Words are vessels indeed.
May these words of my mouth and this meditation of my heart be pleasing in your sight, LORD, my Rock and my Redeemer.
Ps. 19:14
Monday, December 19, 2011
Mary's Obedience

I have been thinking quite a bit about obedience lately, especially in regards to Mary. To think that such a young girl would be called to such a huge and overwhelming task is unfathomable to me. I love how God's ways are so often opposite to what our ways would be. To think that God would choose a girl - not a queen, nor a king, but a simple young girl from the long family line of a mere shepherd boy turned warrior king. Mary, descendant of David, was called to put all reason aside and just trust in sheer obedience.
Mary had a lot of reasons to disobey, and flat out refuse the call on her life. She had to endure the initial shock of the angel, then had to try to wrap her head around the mysterious and frightening idea that she would be with child which I am sure led to the panic of what others would say about her, her family, and her betrothed. I am sure she feared her for her life. How do you explain to the one you are giving your life to such inexplicable news? I can't even begin to imagine the look of pain and betrayal in the eyes of Joseph (who we know loved her enough to want to divorce her in quiet - before he knew the truth from the angel himself). Ugh - talk about a stressful situation! Yet here we see Mary in the middle of an inexplicable encounter choosing to obey. After asking the obvious question of "how can this be...since I am a virgin?" she receives yet another ambiguous piece to the mysterious puzzle. Even after this strangely wonderful, yet frightening encounter, she simply says "I am the Lord's servant...may your word be fulfilled." (Luke 1) WOW - talk about obedience.
I know if it were me, I would have had a million questions. My type A personality would have asked the angel to hold on for a moment while I grabbed for a pen and paper so I could jot down notes while he spoke. I know our own personal journey with Grace was full of the unknown. Trusting the Hand of an unseen God is not easy. Yet I knew His voice, for He had guided me all my life through ups and downs, highs and lows. He was my Shepherd, and although I did not know the path and although it often was a path I did not want to tread, I still trusted His rod and His staff. Obedience for me didn't always come easy - and perhaps it was a struggle for Mary too? There were times I fought, and fought hard against what I knew was His will for Grace. He, in His love for me, allowed me the fight - but, as Andrew told me - God is big enough to handle our anger, questions and disappointments.
So as you enter this Christmas season, I am mindful that there are some of you who are in the middle of an inexplicably painful place. Although it has been a few years without Grace, the painful reminders of life without her remain. There are some of you in this ardent place of grief this year. There are also some of you living in the unknown of whether this Christmas will be the last one with a loved one. While some are picking up the pieces of broken dreams and relationships. No matter where you are in the scheme of life this year- whether you are singing all the jolly Christmas songs with gusto because life is beautifully wonderful, or if you find yourself crying yourself to sleep longing to just feel at peace again, I encourage you to come to the rough wooden cradle of Jesus, just the same, and worship Him. For in Him true peace, joy and fulfillment can be found. In Him, the eternal hope of true healing and wholeness is available to all who call on His name. Will you like Mary, in the midst of chaos and unfathomable confusion, choose to obey even if it doesn't make sense? Will you accept the call on your life and trust that He can make beauty from ashes?
The past few weeks for me have been emotionally draining, and I found myself yet again at the foot of the old rugged wooden cross. Obedience is not always the natural choice. It is often uncomfortable and even painful. Obedience for me is constantly and willingly releasing the pain that I sometimes so desperately want to hold on to. It is trusting even when I don't have the blueprint of life ahead of me. This Christmas may my response be as Mary's, in obedience may my heart say "I am the Lord's servant."
Monday, December 12, 2011
And So We Light a Candle...

And so we light a candle reminding ourselves that your light still burns brightly. As we enter this Christmas season, our hearts though grieving, find comfort in the HOPE of Christ's birth, death, and resurrection. It is this very HOPE that spurs us forward knowing that with each passing day we are one day closer to being reunited with our sweet pea, Gracie, for all eternity.
We also light a candle in remembrance of other sweet angels and their families who have walked the painful path. We thank those of you, our dear family & friends, who continue to support us with your love, uplift us with grace & understanding, and bless us with your kindness and gentle encouragement. ♥
♥ Sweet baby of mine - may you always remember that we will never forget, and never forget that we will always remember. ♥
Friday, December 02, 2011
Babies Don't Keep...
In the next few weeks Canuck Place will put out the latest CP Newsletter - and we were selected as the feature family! Anyone who knows our story, knows the important role Canuck Place had in our journey of Grace. As I read through the article, my heart swelled with pride and pain all rolled into one. Knowing that my sweet baby will once again impact this world, and hopefully will spur the hearts of others to give to this incredible organization fills this Mama's heart with joy. On the flip side, sharing her story also pricks my grieving heart to its core, reminding me of how quickly time is passing and how much I long to have her back in my arms.
A few friends have just had babies, or are just about to give birth - it's a wonderful time of year to be pregnant or to have a tiny bundle to snuggle with! I often think of how Mary must have felt cradling our tiny Saviour in her arms that first night. As I reflect on how quickly time is passing, I want to share with you a special poem that a friend of mine shared with me awhile back - it's a beautiful reminder to savor the moments with your child. And that is what is on my heart today - reminding myself to enjoy the moments...for afterall, I have learned all too well to my sorrow - that babies don't keep.
Mother, O' Mother, come shake out your cloth,
Empty the dustpan, poison the moth.
Hang out the washing, make up the bed,
Sew on a button and butter the bread.
Where is the mother whose house is so shocking?
She's up in the nursery, blissfully rocking.
Oh, I've grown as shiftless as Little Boy Blue,
Lullaby, rockaby, lullaby loo.
Dishes are waiting and bills are past due,
Pat-a-cake, darling, and peek - peekaboo.
The shopping's not done and there's nothing for stew,
And out in the yard there's a hullabaloo.
But I'm playing Kanga and this is my Roo.
Look! Aren't his eyes the most wonderful hue?
Lullaby, rockaby, lullaby loo.
The cleaning and scrubbing can wait till tomorrow,
But children grow up, as I've learned to my sorrow.
So quiet down cobwebs; Dust go to sleep!
I'm rocking my baby and babies don't keep.
~ Ruth Hulbert Hamilton
Friday, November 18, 2011
Re-post - This Remembrance is GRACE...

I have recently been following on FB, an amazing family who are now walking the road of grief as they said good-bye to their sweet baby girl Anaya (http://healinganaya.blogspot.com). As I read their final moments, the memories of Grace swirl around me. Yet, these memories are welcomed, though painful, are beautiful and treasured. And so, I decided to re-post this poem in honor of Gracie, and a new little angel - Anaya.
I awoke to find you were the first thought on my mind
And I remembered you.
As I made tiny beds, and made sure mouths were fed
I remembered you.
As I heard little voices, playing and making noises
I remembered you.
I thought of your face, & all of God's grace
I remembered you.
And though this remembrance brings tears and pain
Each tear drop that falls, does not fall in vain
For each is filled with memories & gladness too
Reminding me that there was a 'you'
Some say time heals, and in some ways it's true
But remembrance is a gift for it links me to you
Some people say forget, move on, she's in a better place
But what they don't understand is that this remembrance is Grace.
Monday, October 31, 2011
The Halloween Dilemma...

So...as a Christian family - what do you do?
Do we point a crooked finger in disgust at these devilish decorations, turn our lights off and ignore it all together? Or do we embrace the fun of the day and smile at the sweet little children coming door to door? Do we ignore the evil and try to solely focus on the good? These questions have been swirling around my mind as I try to gain perspective on this day.
For what it's worth, here's my take.
Even though this day is often used as a day to celebrate FEAR and death, we take this day (and really every day) and try our best to redeem it for Christ. We celebrate His victory over death and celebrate the HOPE of eternal life. We carve pumpkins and explain to the children that we are as a pumpkin in the sense that we are but a shell. Inside of us, we all have 'guck' and when we invite Jesus into our lives He comes and cleans us from the inside out. He then lights our heart on fire and the Holy Spirit shines through us, just as the candle shines through the pumpkin. So when we are out at night and see the glow of jack-o-lanterns, we can relate back to Christ shining in and through us. We have some years handed out candy, blessing the children of our neighborhood with God's love through a smile, encouraging word and lollipops. We have also attended Harvest Parties at local churches for some good ol' family fun and bonding. Good can be found and had on this day, contrary to popular opinion.
As for the scary graveyard and demonic looking inspired homes, we say to the children that even though these homes celebrate death, we as a family celebrate life. We have worked hard to make Gracie's grave a place of peace. Our children would have never thought of a graveyard as a scary place until seeing the front yard of a house decorated as a haunted grave-yard. We celebrate that Grace is now with Jesus, alive and healed! The grave is not a haunted place, it is just a special place on earth where we can go and remember our Gracie. Our kids run and play and giggle at Gracie's grave! They will at times shed a tear of remembrance, but mainly they just love running through the beautifully manicured lawns and throw pennies in the pretty fountain. We don't celebrate Gracie's death at her grave, no! We celebrate her life here on earth and her true life in heaven! As a family we are bent on celebrating hope and life, yes even on this day of fear and death for Christ is bigger!!! Christ has risen, He is stronger than fear, ghoulish ghosts, and death. After-all, He leaves no room for fear for He has defeated it all! So as Christians we do not need to fear Halloween or even fear itself for we hold the Hand of the One who holds the keys to life and death!
You are stronger, You are stronger
Sin is broken, You have saved me
It is written, Christ is risen
Jesus You are Lord of all
Hillsongs - Stronger
Sin is broken, You have saved me
It is written, Christ is risen
Jesus You are Lord of all
Hillsongs - Stronger
Monday, October 17, 2011
'A-ha! Moment'....Am I Ready for This?

So this past week I zipped over to the island for less than 24 hours to see my lil' sis and have a Gracie Day. It was a beautiful sunny fall day and I started the day with a massage from my trusted RMT. I was once again explaining the pain in my shoulders and neck - due to the year of constant bending over and caring for Gracie, pumping, etc. The pain, years later, still remains leading to fitful nights of sleep and finally into daily morning headaches. So as I was going on about the strain in my neck she smiled and said..."you do realize the symbolism of this pain don't you? You have been carrying her still...out front and over your heart. Perhaps it's time to open up your arms, not let her go necessarily, but just move her to your back - like a piggy back. When you carry a child piggy back you can't slouch, you must stand strong. Think about it..."
It was like a light went on...the 'A-ha' moment! Have you ever had these moments when timing is perfect and the Holy Spirit reveals truth to your heart? As I thought about her loaded words my mind is flashed back to a few weeks ago. I realized that in my minds' eye Gracie was still a sweet little babe, and I think in some was she always will be. But in reality, Gracie would be 3 1/2 - almost 4 come February and that realization winded me. My boy, Isaiah just turned 5 in the summer. He can do so many things now and to carry him in front cradled is so unrealistic. When he gets tired (which isn't often) I carry him on my back...not in front. Eventually, he will be too big to piggy back, and he will simply walk beside me holding my hand, then he will just walk beside me, and eventually he will walk a different path altogether.
As tears well up within my heart this morning, I realize I am in a new stage of my grief. Just like I grieve/celebrate milestones with Olivia and Isaiah, I too must do the same with Grace. When Isaiah started Kindergarten I was sad to say good-bye to the preschool years, yet so happy for him to experience all the wonders of school and beyond. Olivia asked me early on after Grace passed if she will grow up in heaven? It was then, and is still now such a profound thought. I am beginning to think that yes...just maybe she will be and has been 'growing up' in heaven all along. The memories I have of Gracie are of her as my sweet baby, and I grieve that baby in my arms. Yet, there is a spark of excitement when I envision her fully whole and healed as a 3 1/2 year old little girl.
I realize that I have been hiding behind Grace in some ways, hiding behind my grief so that I don't have to face the world without her. Are you holding on to something that is taking the forefront of all of your thoughts and decisions? Perhaps there someone who you need to let go of? Is there a situation that you need Jesus to come carry the burden for you? What is your 'A-ha!' moment?
So this morning, even though there is still remnants of the pain, I choose to embrace life with arms wide open and allow Grace to simply 'have my back.'
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